Journal Entry - Brenna - Thunderbolt 5

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Well, Brenna went to school for the first time in 4 weeks! She is quite peppy in her 'Happy Bunny' shirt that says, "I just realized I don't care!" She is also sporting a new do! She was getting so hot she decided to chop the locks for summer. It's very cute. There is only 6 weeks left of Jr. High! I am so used to year round school.

She is doing soooo much better through the night-it's just the first hour that she has trouble getting to sleep. We are using Melatonin and Valerian to calm her down. Usually, when she does wake up it is because of the pesky oximeter that doesn't read very well. She is still a physically a little weak, but that is improving daily along with her respiratory. She is down from 1 lpm to 1/2 lpm (for those who understand, ha, ha.) Hopefully, she will be back to her January baseline soon!

GOOD NEWS! Last week, Brenna had a swallow study which I was really excited about because she has been chewing food and trying to swallow liquids. I was watching the real-time x-ray and it showed her trying to swallow about 5 times but it stopped at a certain point every time. Then she aspirated a little as she spit it back up. Cute Courtney, who did Brenna's speech therapy last summer, told me the problem is that the radiation and intubations (3) that she has had ruined the muscles at the top of her esophogus so much that they won't allow food past. But there is a procedure to correct the problem! Of course, the moment I got home, I called her ENT to make the appt. I can't believe we are so close to having her swallow food again! No more spit cups! Wahoo!

My kids are all looking forward to going to Camp Hobe at the end of June. Poor Brenna! She hasn't been able to enjoy it more than the Day Camp every year and this is the last year they can go! I feel like Camp Hobe rewards families that do chemo instead of natural methods.

We are building a rambler just a few blocks away. We have a beautiful two-story at the moment. But for Brenna's sake (and mine and Gordon's backs sake) we need a rambler so we don't have to keep carrying her up and down the stairs. So if anyone is in the market around August for a beautiful house in Riverton let me know!

The prayers are working! We love you all and God bless you all!

Racquel

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Título	Fecha de publicación	Acciones del elemento
She's With Me	4/11/24
TWENTY FIVE!	5/1/18
O death, where is thy sting?	5/11/17
Happy 24 Brenna!	5/1/17
Happy Heavenly Birthday!	5/11/16
Hallelujah - An Easter Message about Jesus Christ	27/3/16
Happy 23, Brenna Boo!	5/1/16
Happy 22, Brenna Boo!	5/1/15
Remembering Brenna	6/11/14
Happy 20th Birthday!	6/1/13
6 Years Ago Today	6/11/12
Happy 19th Birthday!	6/1/12
5 Years Ago Today	6/11/11
Memorial Day	1/6/11
Happy 18th Birthday	6/1/11
True Meaning of Christmas	23/12/10
4 Years Ago	6/11/10
What Easter and Our Family Reunion have in Common	5/4/10
We do not mourn as those without hope	18/1/10
Embraced By God's Love	11/1/10
Happy 17th Birthday	7/1/10
It's been 3 years	6/11/09
Eternal truths can comfort us when loved ones die	3/10/09
Happy Birthday Brenna	7/1/09
Angels We Have Heard on High	27/12/08
Drugs R Not The Answer	21/10/08
Angels for Brenna	23/7/08
The First of Many Miracles	11/6/08
In the beginning...	28/5/08
The Best Mother's Day Ever	26/5/08
Life is Everlasting	14/5/08
Talk on Resurrection	29/4/08
Gordon B. Hinckley's Funeral	5/2/08
Brenna's 15th Birthday	7/1/08
One Year Ago	7/11/07
Brenna's Favorite Primary Song	9/9/07
It's about time	30/7/07
The Resurrection Is at the Core of Our Beliefs	11/5/07
A Little Update...	26/4/07
Precious in the sight of the Lord is the death of his saints	24/2/07